In recognition of World Sickle Cell Day, Cayenne Wellness Center and the Global Alliance of Sickle Cell Disease Organizations (GASCDO) will host the 7th Annual 24-Hour World Sickle Cell Day Marathon on June 19, 2026. The free virtual event will bring together patients, caregivers, advocates, healthcare professionals, researchers, policymakers, and community leaders from around the world for a full day of education, awareness, advocacy, and action.
The marathon is centered around the 2026 theme, "Closing the Survival Gap: Equity in Sickle Cell Care." This theme highlights persistent disparities in access to diagnosis, treatment, mental health services, research opportunities, and quality care experienced by individuals living with sickle cell disease globally. World Sickle Cell Day is recognized annually on June 19 to increase public awareness and understanding of the disease and the challenges faced by patients, families, and caregivers.
Throughout the 24-hour event, attendees will hear from global experts and community leaders representing multiple countries and regions. Sessions will address topics including healthcare equity, mental health, caregiver experiences, legislative advocacy, blood donation and stem cell registries, data collection, media representation, and innovations in sickle cell care. Featured sessions include "Warrior Speaks," featuring individuals living with sickle cell disease sharing their personal journeys; "SCD Shaping Siblings," a panel exploring how the disease impacts siblings and family dynamics; "The Role of a Caregiver and the Fight Against SCD," highlighting caregiver voices; "Mental Health and Sickle Cell Disease," examining the emotional and psychological impact; and "Closing the Survival Gap in Sickle Cell Disease: From Crisis Care to Chronic, Continuous Care," featuring international leaders in sickle cell medicine and advocacy. Community engagement activities, support groups, author conversations, and patient storytelling sessions will also be included.
"This event was created to ensure that people affected by sickle cell disease know they are not alone," said Dr. Carolyn Rowley, Founder and Executive Director of Cayenne Wellness Center. "By bringing together voices from across the globe, we can elevate awareness, strengthen advocacy efforts, and push for the equitable care every person living with sickle cell disease deserves."
The event is made possible through sponsors including Advocate Sponsor Agios Pharmaceuticals and Community Sponsor Fulcrum Therapeutics. Registration is free and open to the public at https://rebrand.ly/wscd2026. More information is available on the event website at https://sicklecellday.com.
Cayenne Wellness Center is a 501(c)(3) nonprofit organization dedicated to improving the quality of life for individuals and families affected by sickle cell disease through education, advocacy, community engagement, and access to supportive resources. The Global Alliance of Sickle Cell Disease Organizations (GASCDO) is an international network committed to strengthening collaboration among sickle cell organizations worldwide and advancing equitable care, awareness, advocacy, and support for individuals living with sickle cell disease.
